When you wake up in a panic every morning because you know you are going to be in pain, but you are terrified to find out where. When you have three good days in a row, and start to get your hopes up, only to have that hope dashed when you wake in excruciating pain from your knees to your toes. When you are tired of canceling plans with friends, so you give up and stop making any. When you feel your life’s energy has been sucked out, and you don't even remember what you were like before the debilitating exhaustion set in…